Posted in bravery, cancer, communication, health, strength, support

What not to say to a Cancer Warrior

It’s never easy interacting with a cancer warrior; after all, you have to consider a list of factors before entering into a conversation with them. How is their mood, how are they feeling on that particular day, gauge how they want to be spoken to, keep your own emotions in control… along with many other aspects. I haven’t been on your side so I can’t comment with assurance but it’s what I assume.

On the other hand, I can confidently confirm that no one deliberately speaks rudely to a cancer warrior, however one can express themselves in an unintentionally insensitive or offensive manner.

Therefore, having lived in the cancer universe for almost two years, I can boast of a decent sized list of such comments to share with you. Not because it gives me pleasure to publicly embarrass myself, but because some of these comments are so often repeated, that I had to conclude that many well wishers don’t realize what they are saying is being counterproductive to their objective of motivating or cheering me up.

So without offending my well wishers,

Here is presentingggggggg 10 things to not say to a Cancer Warrior

1.Cannabis? download

“Can your doctor prescribe Marijuana”? he asked. “Ermm, I don’t know.” I replied with a grin. “Do you think you can get me some?”. “No way!”. “C’mon it’s the least you can do for me, you’re anyway going to die.”Haha, no I am not!

While I found this conversation quite hilarious, my family was deeply offended by what was said and I haven’t met him since.

Well, there is a school of thought that endorses cannabis to cure cancer by citing that many doctors admit it helps recede the disease. Still I suggest not to ask this favor of a warrior. I also suggest you don’t offer them some if you have access to it.

2. We were nice to you because you have cancer:

This wasn’t told to me directly but to my mum. The guy was lucky that mum handled the situation with dignity. If he’d said this to me directly, his tender parts would have received a kick from my foot.

I was deeply offended by his comment and let me assure you that no warrior wants sympathy or pity and we do not need anybody’s fake niceness.

3. How can he/she be getting married/travelling or doing XYZ when she has cancer?

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This is another one which angered me very much! I fail to see how people can sit and judge my friends and family’s lives from the outside.

How do they know what conversations have taken place among us to arrive at the said conclusions? Do they know that it was me who insisted that my friend get married or my family member travel in the first place? And why is it anybody’s moral responsibility to put their lives on hold while I fight this disease? 

We all come with our Karma and it is mine to see through cancer, I would hate to pause anybody else’s life till I go into remission.

4. There are healthier people dying before you

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The most common form of ‘consolation’ I have received from well wishers is with them telling stories of knowing someone perfectly healthy pass away, so I should be happy I am alive.

Let me tell you something- I have cancer so I am sad; you told me about somebody else passing away, that also makes me sad. How am I supposed to see a silver lining in this?

Yes, I see the point that is trying to be made, but all I can say is that there is a lot of difference in dying suddenly and watching the clock tick with the uncertainty that the disease will take you.

5. Share stories of others who died of cancer

Know a warrior who battled cancer and survived? Great tell me all about it. But telling me about someone who didn’t, what goal is that going to achieve and what is the expected reaction from a warrior?

This is the opposite of what you would learn in ‘Cancer Support 101’ or ‘Cancer Support Giving for Dummies’.

I can’t count the number of times I have had to politely ask my well wishers to stop their story mid way.

6. When will your chemo get over? When are your next round of tests?

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Maybe this doesn’t apply to all cancer warriors, but such questions make me uncomfortable. Primarily because I don’t know when I will go into remission. I should have by now and I surely want to. But each time I am investigated and I say “I don’t know” I feel like I have failed an examination and I am letting everyone down.

Having got three back to back bad reports, I don’t feel like telling people when my tests are. Not because I am superstitious, but because they will follow up to know the result and if it isn’t good again, I am going to feel like a failure… again.

7. When will your hair grow back?

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When my treatment ends? When my treatment changes to something targeted? When the world ends?

We have cancer. We have lost our hair. We are not in remission. How will we know when our hair will grow back? But more importantly, what are you going to do with that information? If you want to make small talk, there are loads of other things to chat about.

8. Cancer or no Cancer?

They: “How are you feeling?”

Me: “On top of the world :D”

They: Oh, you are healthy. yaaayy.

few days later

They: “What are you doing?”

Me: “On my way for chemo.”

They: “Oh! But you said you were fine”

Ermm, no I didn’t.

As I had mentioned in my previous blog How to interact with a Cancer Warrior, A warrior has vertical and horizontal days post chemotherapy treatment. On a vertical day, one can still feel on top of the world while having cancer.

Therefore:

Feeling ill [horizontal day] ≠ going to die

Feeling well [vertical day] ≠ cancer free

But the opposite is a common assumption many make.

 9.Sobbing hysterically  “I spoke to my astrologer, he said you are going to die.” 

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WHA???.. No comments.

10. Oh! There are various types of treatments available, you’ll be fine.

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When I tell people I have breast cancer I’ve received responses like “Oh, that’s an easy cancer.”, “There are so many options available for you”or “You’ll be fine in no time”

Really? Then why after almost two years I am still not fine? Also, I’m sorry my cancer is ‘easy’ should I choose a tougher one next time?


I understand that these are well wisher’s way of communicating with warriors in the best way they know. But some statements can sound down right ridiculous… easy cancer?

Well wishers and support people should evaluate what information they share with warriors and when to refrain from speaking. It doesn’t mean that you coddle us, but it surely means that you don’t tell us that we are going to die.

I’ve recently had a mastectomy without reconstruction and I’m prepared for the next series of insensitive comments. You never know, there might even be a Part 2 to this blog. 😉

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Warriors are not always the fastest or strongest people. Warriors are those who stand between their enemy and all that they love and hold sacred.

We are all warriors against cancer.

Cancer. Cancer. Cancer. Cancer. Cancer… scary word. No matter how many times you say it, you can’t befriend it. Cancer is that mysterious subject that we hardly know anything about. Except vague associations like chemotherapy, baldness and death… and some cases of survival. It has such a bad image given that it is passionately followed by Lord Yama, so dissociation is a natural course of action. Unless one is forced into circumstances that don’t give them a choice, why would one leisurely learn about this omen of death?

I didn’t know anything about cancer until it was slapped into me one fine day during my sense of self discovery. Cancer was this ugly slug residing at the bottom of an ocean bed that one could look at from above, protected by a body of water; we’ve all watched it randomly jump out and take someone for itself, but for me it lived in the abyss. I was far removed from this ugly slug with my belief that it would only take other people; never me or my family. That’s when the universe decided to humble me by flinging me into that abyss and even after a year and a half of choking and throttling, I am aggressively trying to swim upwards to pierce through the water for a gulp of fresh air… and I know I will get there eventually.

However, during this journey towards the surface of water, I learnt to live with my cancer too.  And that learning is the inspiration for this blog. The truth is that my cancer hasn’t been all bad. It’s been an odyssey of finding love, forgiving, healing, discovering myself, losing the people I don’t need, finding God and so much more. All these beautiful things came into my life only because of cancer. Cancer made me strong.  It taught me about accepting the changes that come in life and learn to live with them happily. It made me realize that happiness is my choice and taking back control of life is my decision. Cancer is only a state of mind.  I am confident that each cancer warrior has been faced with this choice and will have beautiful narratives to share on their decision on how to live with their slug.

See, a warrior can choose to live like a victim, be a patient on his bed and nobody would force him to do anything otherwise. That’s because his support group doesn’t know what he is feeling and will therefore let them be. A warrior has everybody’s unadulterated sympathy; hence he has to become his own motivator. Whether it is getting out of bed, talking, smiling, maintaining a routine or trying to not be envious of non cancerous humans. Every step is their war cry because a warrior holds his quality of life sacred and will fight for it. Cancer wins the day it beats a warrior mentally and he surrenders, but till he continue to treat it like a common cold and live life the way he wants, he is winning. The disease is scary, but our attitude towards it doesn’t have to be. Cancer can coexist with our normal life. It isn’t the end of the world and a warrior won’t let the thought of it tie a noose around his neck.

This brings me to my rationale behind this blog. You. You know somebody who has fought cancer; you may at some point be a support group to a diagnosed warrior. And you may not be prepared for it. Because nothing can prepare you for the intensity of emotions; neither yours nor theirs. Survival will happen. But the word cancer is so scary that we forget to focus on the happy moments and normal life that we live while with it. Your perception and reaction on cancer creates a domino effect to the supportive ecosystem. Don’t feed your fears to a warrior, don’t sympathise. Help them celebrate their life just the way you are celebrating your own. After all, it is the life in one’s years that count, not just the years in one’s life.

Cancer Warriors